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TOPIC: Fundraiser for our disabled son!

Fundraiser for our disabled son! 7 years 7 months ago #85

  • michael.darst
  • michael.darst's Avatar
My name is Michael Darst. I am a Police Officer with the Indianapolis Metropolitan Police Department in Indianapolis, Indiana, USA. My wife, Amber, and I created a fundraiser for our 11 month old son, Colton who is disabled. Below is his story. Please help us spread the word on his fundraiser!!

The site is giveforward.org. Search for Colton Darst. Or the quick link is gfwd.at/19hLCdW

Colton Darst's family and friends are uniting to raise money for medical equipment and treatments Colton needs to gain his mobility.

On September 20, 2012, Colton Darst was born. On this special day, we were expecting a beautiful healty baby girl. Unbeknownst to us until the delivery, our baby girl was a incredibly handsome baby boy. We were also blind-sided with the unexpected diagnosis that our newest child had severe medical issues. At birth, Colton was diagnosed with a massive double hernia, and a condition known as Arthrogryposis. This disease is characterized on the outside by severe contractures of the joints in the arms and legs. Colton had these severe contractures in his legs and in his wrists and thumbs. This condition also affects numerous organs throughout the body, and can have extremely negative effects on organs. Because of the possibility of his organs being affected, Colton was immediately taken from us and underwent numerous tests. In his first few hours of life, Colton had 2 full body x-rays, 8 separate ultrasounds and 2 full body MRI's. Fortunately for us, Colton was blessed with only the external disabilities. Colton spent a few days after birth in the NICU unit before he was finally allowed to go home. Since he was released from the hospital, Colton has had a very busy few months. At 5 weeks old, Colton had his first surgery to repair his double hernia. He has also had 2 separate surgeries on his ankles, one of which was a major reconstruction of his feet, including bones, muscles, tendons and ligaments. Colton has also endured over 6 months of painful castings of his legs. These surgeries and castings will hopefully allow Colton to one day walk. We say hopefully, because the doctors have said that at this point in time, it is a 50-50 chance. Along with the problems with his legs, Colton has no use of his arms. Since birth, Colton has not been able to move his arms. He has undergone numerous genetic tests, many of which cost thousands of dollars. These tests have determined that Colton has a genetic defect that prevent him from ever being able to use his arms. This defect makes his arms "too heavy" for his body to move. There is no cure for this defect. We have, however, found a ray of light in regards to his arms. A doctor at Nemours Childrens Hospital in Wilmington, Delaware has developed an very innovative "machine." This machine has been nicknamed "magic arms." These "magic arms" are an external system of levers, pulleys, rubber bands that eliminate the effects of gravity of arms. These "magic arms" could possibly help Colton to gain some semblance of having "normal" arm movement. However, these "magic arms" are not cheap. They cost several thousand dollars. Along with the cost of the "magic arms", there is also the added cost of having to travel to Delaware several times for several days at a time. To date, our medical bills for Colton have already topped $200,000. With at least a dozen more surgeries to go that we know of, these bills are only going to skyrocket. If we are able to get Colton to Delaware, he will require new "magic arms" every year as he grows out of them. Our goal is for Colton to one day be able to walk unassisted, and to be able to use his arms, assisted or unassisted. To do this, we need YOUR help. Colton is the happiest child we have ever seen, even with his conditions. He is always smiling, laughing, and giggling. He loves people, and loves to go on walks. Colton has been our rock in an otherwise difficult situation. Help us to make his future bright and limitless. Thank you and God Bless! The Darst Family-Michael, Amber, Peyton, Kayla and Colton
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Our Mission

-Share our stories
---Obstacles we faced
---What we've done
---What we learned
---What we need
---What we offer
-To help each other  
    
Our purpose
    Our story

Catherine Gogel, Publisher

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